On Sunday, October 11, Emma Heming Willis will take the stage at ISFTD 2026 to share The Road(map) to FTD Diagnosis and introduce an initiative designed to help families navigate what comes after an FTD diagnosis.
The FTD Care Roadmap began as a simple two-page guide developed with UCSF and is now being expanded through Emma’s collaboration with the Association for Frontotemporal Degeneration (AFTD).
Designed to be shared at the time of diagnosis, the Roadmap connects families with trusted information, practical next steps, support, and opportunities to engage with research.
“No family should walk away from an FTD diagnosis feeling lost. They should leave with a clear sense of what comes next and where to turn for help.”
About Emma Heming Willis
Emma Heming Willis is an advocate for caregivers and families navigating neurodegenerative disease. Following her husband Bruce Willis’ diagnosis with frontotemporal dementia, she has worked alongside AFTD to advance FTD awareness, resources, research, and caregiver support. She is also the founder of the Emma & Bruce Willis Fund for Dementia Research and Caregiver Support and the New York Times bestselling author of The Unexpected Journey.
Learn More About Emma’s Advocacy
Follow Emma’s ongoing work to raise awareness of FTD, support caregivers and families, and advance dementia research on Instagram @emmahemingwillis and@emmabrucewillisfund.
We look forward to welcoming Emma to ISFTD 2026 and hearing more about how the FTD Care Roadmap aims to improve the experience of families from the moment of diagnosis.